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Our story

Our five-month old baby needs a liver transplant.
Fotografie0020
Vlad was born on the 1st of December 2012 in Bucharest, Romania. Words cannot describe the immense joy and happiness I felt when I first took him in my arms. On the 8th of December, after being released from the hospital, we moved to Arad, Romania… our plan was to stay there for a longer period of time. Everything was prepared for our arrival: baby’s room and wardrobe, baby’s crib, and all the other necessities.
When we left the hospital, our child’s jaundice had not disappeared and we were advised to call the doctor if we noticed any whitish stools. We were happy to see Vlad growing up, eating and sleeping well, behaving like any other baby his age. Because the jaundice was still present, on 24 January we went to the hospital for a series of tests. The results of these tests were alarming (they can be seen under the section ‘Medical documents Vlad’). Saturday, 26 January, our son had his first whitish stool, and we immediately got busy looking for a pediatrician specialized in gastroenterology. On 28 January, we ended up in Timisoara, Romania, where we had an appointment with a renowned Romanian specialist. The next day, our nightmare was about to begin.
On 29 January 2013, the first thing we did in the morning was to be at the „Louis Țurcanu”Emergency Hospital for Children in Timisoara for tests and examinations. While we were waiting for the results, we were prescribed a number of medications that the hospital did not have, some of them, like questran, do not even exist in the Romanian market. With difficulty, we had to obtain them from Germany and Italy.
On 13 February we were informed about the diagnosis …. billiary atresia of intra hepatic and extra hepatic ducts, a very rare disease, characterized by the luck (in our case) of biliary ducts, life expectancy in this case being maximum two years. The only two solutions to this problem are the so-called ‘Kasai procedure’ (which can only be performed during the first three months of baby’s life and which does not guarantee the problem will be solved); and a liver transplant.
Though the emergency of Kasai procedure was obvious, the doctors in Timisoara took the decision to wait ten more days, to see how the baby was responding to the questran medication (this medication was supposed to open up the biliary ducts, useless in Vlad’s case, as he does not have intrahepatic biliary ducts). At the same time with questran, he was administred ursofalk (we found out later that the two drugs should never be taken simultaneously). Considering the medical errors that occurred, as well as the urgency of the situation, on 16 February we transferred our son at ‘Marie Curie’ Hospital for Children in Bucharest (ex Budimex hospital).
A cholecysto-porto-anastomosis surgery and a biopsy were simultaneously performed on 26 February. The procedure did not make any difference, as the intrahepatic biliary ducts are missing; it is not possible for Vlad to process and eliminate the toxins from the liver, the result confirmed by the biopsy as well. As the doctors said, Vlad was basically born without a liver. Thus, we were released from the hospital on 8 March with the recommendation of a liver transplant.
From that moment on, our fight with the Romanian burocratic system began. Transplants for children under the age of one are not routinely performed in Romania, so we took the necessary steps to get approval for the transplant abroad. Unfortunately, the Romanian health insurance system only partially covers the costs. Depending on the clinic which will accept our case, the costs will differ. They include transportation costs; pre-surgery costs; compatibility tests; the transplant costs; post-surgery costs; and medication after surgery. Moreover, our child has to be on a special diet (the costs of the special formula milk he now gets amount to about 280 EUR  a month) and medication.
All these expenses are beyond our financial possibilities. We have governmental jobs with average salaries. We thank all of our friends and colleagues that have helped us so far. We couldn’t have gone so far without your help.
Any donation is needed and greatly appreciated.
Below please find the bank account information (in EUR):
Bank name: BRD GROUPE SOCIETE GENERALE; Agenția Piața Romană
Account holder: Botan Mihai-Deliu
IBAN: RO77BRDE410SV86030484100
SWIFT Code: BRDEROBU
Bank’s address: BULEVARDUL MAGHERU NR.35, SECT.1, BUCURESTI, ROMANIA
You can also help us by distributing this on your blogs/Facebook, etc.
Thank you very much!
3 comentarii
  1. Gabriela Gaftea permalink

    Buna seara
    am aflat recent de povestea lui Vladut, cam tarziu, ce-i drept, dar as vrea sa va spun, totusi, ca locuiesc in Bruxelles si, daca va ajuta cumva, va pot caza la mine. Stiu ca probabil e prea complicat, pentru ca e o ora de mers cu trenul pana la Gent, iar eu nu am masina, dar am vrut sa incerc sa contribui macar cu o propunere.
    Multa bafta la swimathlon!
    Gabriela

    • Mulțumim de ofertă, Gabriela…
      Acum, în prima perioadă ar fi prea complicat, căci o navetă zi de zi la Gent dus întors e foarte obositoare.. După externare, după ce se răresc controalele, oferta ta ar fi o soluție bună pentru noi, Mulțumim,ținem legătura. am să-ți trimit pe mail un mesaj cu mailul meu.

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